Download The Multiple Sclerosis Manifesto: Action To Take, Principles to Live By PDF

TitleThe Multiple Sclerosis Manifesto: Action To Take, Principles to Live By
Author
LanguageEnglish
File Size1.2 MB
Total Pages357
Table of Contents
                            Contents
Acknowledgements
Introduction: The Manifesto
1. Proceed with Confidence
2. Be an MS Expert
3. Put Your Symptoms in Their Place
4. Make Your Doctor Work for You
5. Don’t Let Treatment just Happen
6. Go Off-road Responsibly
7. Be Prepared to Enjoy Life
8. Create Health in New Places
9. Reform Relationships on Your Terms
10. Cooperate with Your Emotions
11. Get “In the Mix” for Comfort and Relief
12. Make Things Better
Conclusion: The Bottom Bottom Line
Appendix: National Multiple Sclerosis Society Resources
References
Index
	A
	B
	C
	D
	E
	F
	G
	H
	I
	J
	K
	L
	M
	N
	O
	P
	Q
	R
	S
	T
	U
	V
	W
	Y
                        
Document Text Contents
Page 356

I N D E X 337

“I love you,” 236
increasing social support, 239–240
MSer as child, 229–230
MSer as patient, 228–229
MSer as sibling, close friend, or

acquaintance, 230–231
needing help, 236
needing help now, 236–237
and others with MS. See Self-help

groups
potential romantic interests, 231
reasons to connect with others,

283
seek better ways of doing things,

244
and spouse/partner, 226–228
taking people as they are, 247–248
team building, 243–244
workplace, 244–247

Solu-Medrol, 24, 25, 184
Spasticity

aggravation of, 67
cause of, 66–67
fighting back, 67–68
how it feels, 66
medications, 68
rate of, 66
severe, 67

Speech difficulties (dysarthria and
dysphonia)

described, 87
versus dysphasia, 88
fighting back, 88–89
how it feels, 87–88
impact on your life, 88–89

Spinal tap (lumbar puncture), 34–35
Strategy for living with MS, xvii, 45
Stress, deconstructing, 191–193
Surprises, unexpected MS

described, 183–184
and non-MS stressors, 185
planning for, 185–191

roid rage (aggression) and Solu-
medrol, 184

Swallowing problems (dysphagia)
chest infections and, 84
described, 83
fighting back, 84
Heimlich maneuver and, 84
how it feels, 83
rate of, 83
slow down eating, 83–84

Symptoms of MS
bladder dysfunction, 64–66
cognitive dysfunction, 58–61
constipation, 86–87
describing to doctors, 89–91
fatigue, 52–56
heat intolerance, 61–64
individuality of, 30
involuntary emotional expression

disorder (IEED), 81–82
living with, 51
management of, 32
numbness and tingling, 71–73
optic neuritis and other vision

problems, 73–75
others and, 38
pain, 68–71
paresthesia, 71–73
paroxysmal, 80–81
providing full and accurate

information about, 89
relapses and, 38–39
respiratory dysfunction, 84–86
response to, 51–52
sexual dysfunction, 76–78
spasticity, 66–68
speech difficulties, 87–89
swallowing problems, 83–84
talking to your doctor about, 89–91
tremor, 75–76
vast number of possible, 51
vertigo, 78–79

Page 357

338 I N D E X

This is MS (Web site), 273
Today’s Caregiver (magazine), 242
Treatment

consider all aspects of, 120
cost, 126–128
discussion with doctor, 130, 134
discussions with others, 133
effectiveness, 125–126
emotions and, 120
evaluation, 134
fear and stress as side effects, 125
finances and, 120
form for tracking, 130
injection considerations, 124
making decisions, 135–136
medications, 121–122
monitoring, 123–124
neutralizing antibodies (NAbs)

and, 126
“off-label” medication use, 131–132
“off-road.” See Complementary and

alternative medicine (CAM)
online information search, 131
opinion of your doctor and, 123
opinions of “the people,” 132–133
options for, 128–134
and others with MS, 129
overview, 120–122
refusing, 134–135
scheduling next visit, 124
side effects, safety and lifestyle,

124–125

taking charge of, 109, 119–120
and types of MS, 122
yoga, 160–161

Tremor
fighting back, 76
getting help, 75
how it feels, 75–76
rate of, 75
response to, 75

Tysabri (natalizumab), 25, 121

Unemployment, 202–203

Vertigo
described, 78
versus dizziness, 79
fighting back, 79
how it feels, 79
medications and, 78–79
rate of, 78

Vision problems. See Optic neuritis
and other vision problems

Vitamin D and MS, 27

Web, the. See Internet
Web pals, 274
Well Spouse Association, 242

Yoga and Multiple Sclerosis: A

Journey to Health and Healing

(Fishman and Small), 161
Youth, opportunities for, 315–316

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